Funeral

Services will be held in Weinstein Brothers /Wilmette/

On Friday 19-2011 at 2 pm.

We ask not to send any flowers .

Familys Shiva will be held for 7 consecutive days beginning Friday evening.

Thank you,

Zeltsers Family

Sammy Zeltser Has Passed Away

Dear Friends of Sammy Zeltser,

It is with great sadness that we share the sad news that our beloved Sammy has passed away this morning.

Per his Mom, "Our angel got his wings leaving us devastated to grieve the greatest loss of our lives. May G-d hold his hand on the way to heaven. Until we meet again..."

Funeral arrangements are being planned right now. We will post another message with exact details and location.

Family has requested to NOT send flowers to their home NOR to bring flowers to a funeral home. In lieu of flowers, if you wish to support the family, we encourage you to make a donation in Sammy's memory on their website http://www.sammyzeltserswish.org.

Thank you for your thoughts and prayers for Sammy's soul and his loving family.

Friends of Sammy.

3 years old

Happy second Bday Sammy !
Today is his 3rd B-Day since Bone Marrow Transplant.
He made it that far !
Keep it strong,we love Baby!

Let it snow...

Hi ALL,
We are snowed in! Just like back in Russia ,when we were growing up .
Our Ranch is half way seeped in snow now.
Sammy enjoyed snuggling like a bug in the rug.
Sammy had few suctions in the middle of the night from mucus after he would fall right to sleep.
The city is paralyzed and working hard to get back to normal almost all businesses is closed till tomorrow hopefully.
We had a visitor our Fairy Mother from Chai Lifeline .We have not see Sylvia for over a year.
Kids got presents and we have a great meal Thanks to this wonderful organization.Thank you.
Other wise business as usual.

Sincerely Sammy and Mom

January 2011

Hi All,
There has been slight issue with Sammy's condition.He is fighting a cold like symptoms.
No one knows for sure ,but Sammy is trying to cough and have been successful clearing his
cough on his own for now.
He enjoyed his shower and beauty day.
Now knowing what to expect from the weather I went shopping got few things to keep us safe in home ,while this craziness is over.
Sammy is growing.Not only teeth changes to permanent ,he is over 105IB now!!!!
and 5 feet tall!.
Our little giant! His wheel chair is getting small and bathing chair is only till 110IB
He is almost at 3 years after Bone Marrow Transplant mark .
Its upcoming 2-8-2011.
What a kid ,what a ride ! '
Never know what is next in life ,but today our time with people you care and love is so precious
Cherish every moment ,don't waisted on small stuff!

Sincerely Sammy and Mom

Count your Blessings......

Hi Friends, Happy Hanukkah!
I know I have not updated you all for a while.
There really have been no changes in Sammy's condition. We Thank G-d for that!
Accept he is growing facial hair .......
Counting our Blessings...

Tomorrow ,we are saying Good Buy to some one very special ,only 32 years of age.
We remember her as a younger child of two beautiful girls of Friends Family.
She always smiled. Leaving 2 very young girls behind ,she will be missed by many.
To the last minute she fought with decease.
Cancer does not care about age or race ,it does not know love or dignity-its just takes away people we cherish and love......She will be greatly missed ,her smile will always stay with us.....
Sammy and Mom

Allergy

Hi All,
Sammy had weird sleeping pattern in the past few weeks.Napping on and off sometimes not sleeping for 24 hrs ,finally he is back to night sleeping schedule.It has been a while when I remember sleeping through the night .His meds are going up to help him with small issues and our Nurse had discover that Sammy had major allergy issues,after simple over the counter Benadril ,his lungs are clear now . We are counting our blessings every day.I try to get through the day as positive as possible ,you would think that most people will have some understanding or compassion for our daily battle?! Well,not really . It does not surprise me any more.
All I know that somehow I was chosen to deal with such a devastating disorder ,child illness.
I know in my heart that I was chosen for my strength.To unfold , learn and deal with deadly disorder that ran in our family for several generations ?! To protect future of our Family
making sure that no other child born to our family will have ALD...
Work is busy , Thank G-d for it,not only financially ,but it helps me stay a float.
Many of my customers knows my kids and Family .When kids were smaller one year I had 3 children in 3 different schools ,many of Moms become friends for years.Every now and then I get a question how are the kids?I don't know what to say .On one hand my 'brutally honest' personality does not let me lie,on the other hand I don't want to burden other people with my troubles specially at work,were professionalism comes first.
Thanks Giving is coming soon ,I really don't like this time of the year anymore ,3 years ago 1 day after this holiday we found out about Sammy's diagnosis.....
xoxo Sammy and Mom

103

Hi Friends,
Today I finally got Sammy weight. He is 103 IB.
No wonder why I felt he gained more weight. It funny how 3 pounds can make a difference.
Sammy's growth jumped few times in the last month.
Even know his face still look like young boys ,he has shown signs of teenager .His scale has officially tipped over to young man.
His facial hair and acne have been part of Sammy's appearance ,more and more we hear this deep voice when he caught .At first I did not know were it was coming from ,than I realized that it was Sammy .
Life is taking its course claiming every normal growing development of our son ,but if it was same inside ...
We manage to take him to our lap at evening in Family Room.He feels my heart beat and knows that I'm holding him .He also knows when Alex is holding him and will talk non-sense to him,he is ready to listen to Daddy's jokes and funny songs.
Eva has been sick lately and was not allowed to come near Sammy ,she has been watching him from distance .
Over all ,we are very lucky to have Sammy with us as long as we have -he is our ANGEL
XOXO Sammy and Family

Stem Cell

Hi Friends,
Some of you wanted to find out how Sammy really doing this days.
He is stable ,healthy heart and organs ,but lost connection from brain to the rest of his body.
That is what determines Sammy's vegetative state.
He was examined by Hospice Doctor .He was impressed on Sammy's condition and how well cared he is. Just recently we learned about first stem cell spinal cord operation the results are not available now,but it give us hope.I cant understand people striking stem cell,for those like us with terminally ill children its only hope for the future -Those people must not experience nearly what we do and other families with Alzheimer's and other disorders that stem cell can help to cure condition of loved ones.
Everything is in compering !
So our focus is on keeping Sammy germ free. Any Cold or Flu can affect his immune compromised system.
Sincerely ,Sammy and Mom

Sammy is 10!!!!

Hi All ,
September and October is very busy ,not only at work,but at home too. Allergy season and flu all around make us take extra care around Sammy.
Alex turn 50 ,Eva's-14 Th B-Day was on Oct 3rd and Sammy's follows the next day.
Let me tell you if any one told us that Sammy will survive not only 6 month ,but so far 3 years?!
Go Sammy -
He could not make it without your support and prayers ,something magical happened yesterday-
Sammy turn 10 years old !

Sincerely ,Sammy and Family