What's next?

Hello fans.
There is one thought that is not living my mind.It's like that song that will be stock in your head.
What is next? Do to Sammy's rare condition very few study are available for after bone marrow transplant expectations for ALD children. The other day I received a brochure from United Leucodystrophy Foundation. We are registered there do to generous donation that Sammy's elementary school made in Sammy's name -Thank you again!There is a conference to be held in mid July ,that will discuss Sammy's disorder alone with other Leukodystrophys. We will meet Doctors from all over the world. All leading hospitals from US that Specializing in ALD will be there,what a chance!I will meet parents of children that have same disorder. Some will come to make a decision about Transplant or other possibilities,some will come to find answers for after Treatment-like me.Unfortunately carriers of this horrifying disorder/such as myself/ can experience some symptoms later in life. I like to find out more about it.Aquatic therapy is part of conference. This might be a good chance for us to find right Hospital for plan for the future.Diet,nutrition,alternative medicine,tips,warnings and much more to be discovered at the place that seen and treated the most cases of ALD.
Today Sammy spent a day with his grandma .She was passing Sammy's wheelchair and Sammy decided to play. He catch grandmas skirt and took a ride holding on tight as long as grandma was moving ,so was Sammy. -Why work hard to push wheels ?Sammy is thinking!
Another upcoming visit .Mikhail- older brother is coming to visit.All kids love when Mikhail comes.Today is his 23rd B-Day-Michail we wish you health,good luck,happiness and all dreams come true!You are fine example to your sibilings.
XOXO Sammy and Mom.