Hello friends,
Just recently we came across some new study. Dr Steven Goldman ,PhD in neurology of Rochester University had completed a study that shows some promising results in curring ALD.
"For the first time ,researchers appear to have cured a similar disease in mice by the injection of human stem cells designed to rebuild the sheath of fatty tissue surrounding nerve cells that is lost in inherited deceases such a Adrenoleukodystrophy..."/www.independent.co.uk.com July 5-08/
First time in ages new hope in fight against 'Lorenzo's Oil' decease.
It's not clear what cells can be used!? Does it have to be genetically matched-like Bone Marrow Transplant? Where can we get it? Can it be donated ? Do we have to think about having another child though genetic clinic to save Sammy?How long will it take to introduce this study in to practise?At this point we will make room for another baby and welcome newborn to our family- if this is the only way to help Sammy.
Do you think it's a crazy idea? You will be surprised what parents will do to save a child.
I will be waiting to hear from Rochester University after sending e-mail to this researchers.
XOXO Sammy and Mom.
Wednesday, August 6, 2008
Hew study -new hope
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2 comments:
This is great news!Keep fighting!
Great Research. A new baby is always a blessing. I believe there are banks of stem cells that are used as a storage for requesting parents or for donations to people in need. Perhaps Sammy can benefit from it. May hashem heal all the people in need of a complete recovery!Amen!
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