What a day!
Hello everyone.Today we really accomplished allot. Sammy skipped school and spend whole day with family running important appointments.
This morning we did a presentation in Deerfield High School about Sammy's illness and support to United Leukodystrophy Foundation.This is High school that Sammy's older sister Marina had graduated 2 years ago.This young adults raise money every year for a foundation of their choice.
Our friends from Foundation -DeKalb ,Illinois came to help. We had a beautiful Video-clip put together by our closest friends .This people truly dedicated to help us.From day of Sammy's diagnosis there was no asking or calling -they are always with us tuned to our daily challenges and ups and downs ,they celebrate and cry with us.This friends are the ones that you keep in your heart for ever .Thank you again for making a difference and not being by standers -watching what will happen next. We had a great presentation. After all watched video about Sammy and ULF Foundation we answered some questions and now hope that we will be one of 2 finalists .After we send Marina back to Collage and went to Children's Memorial for our monthly appointment at 11:00am. We consulted our Neurologist and Stem Cell Doctor.
We met Grandfather for lunch and finally at 4:30pm headed home.
Sammy was tired . He relaxed and rolled on his gym mat crawling over mom/ that was right next to him / few times and settled down for a short nap.
We picked up allot of positive energy from High School. This children really making a difference they are helping out important cause organizations that don't have much funding and in desperate need of help. We hope to help raise funds for this wonderful organization that helped us connect to other families with this disorder and most importantly doctors and scientists that are working hard to find prevention and cure for this deadly conditions all over the world.
Any one of us can make a difference in another persons life -have you looked around you lately!? I'm sure you know of a family struggle with an ill child or some person going through rough time ,just ask your self a question -what can I do to help?! Sometimes simple phone call is life saver or just letting them know that you care rather than finding excuses for your self.
XOXO Sammy and Mom
Monday, September 22, 2008
Thank you friends and ULF
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4 comments:
great job! keep it up! may hashem help you!
What a special day at DHS. Our faith has not wavered and our prayers continue to be with Sam and your family. Happy Bday again to Alex.
Laura and Michael
may hashem bless you with a good and blessed new year!
Hi, my name is Sherry Drumm and I have a 5 year old daughter who has CACH a type of Leukodystrophy. She was diagnosed in 2005. She too has gone through alot over the years and has accomplished so much that the doctors never thought she would. I would really like to talk to you more about your journey with Sammy and learn more about spreading the word about Leukodystrophies. I just recently started following Sammy's story, so much reminds me of Lexi and her situation, (Lexi is my daughter). Please let me know if we could talk more, I will leave my email if you would like to contact me.
mamadrumm@aol.com Sherry Drumm
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