Another possibility

Hello everyone.
We are gathering some information about Sammy's latest developments. Will be sending a file to India. We have contacted and got a reply from a doctor in India that has been treating -untreatable conditions like- MS,spine cord injury,Alzheimer's,severe cases of Diabetes and much more with embryonic stem cell treatment .


This seems to be the only other alternative that might be available to help Sammy.It will depend on how far damage has spread out .Do to the fact that this is progressive genetic condition we must stop demolinating brain tissues - before any other treatment can be considered.
Many questions are still pending . Since our last MRI we will be looking for any opportunities for experimental treatment .We are little more desperate than before.
Getting a new wheelchair helped allot. We have a tilt in space option that is making Sammy comfortable if he is sliding down .
Sammy has been listening to music.We also got new CD player and book on tape from a friend .
Sincerely Sammy and mom.