1 year after Bone Marrow Transplant!

Happy Second Birthday Sammy!
Its hard to believe that year had passed by. Ever know treatment did not stop progression of Sammy's disorder there is no regrets. In my resent conversation with Transplant doctor -we discussed the importance of study on Sammy's Transplant case as the first ALD case in Children's Memorial. It was not only chance to save Sammy's life ,but an important study for future cases on ALD boys. Sammy did not get full benefit of this treatment -but he made a difference for the future,yet another good deed .
Today brings a certain definition to what this whole year meant to us and what this family has been through -every one of us.Trying to shad some lite on this life changing experience we realize that in the past year we recognize how much we mean to each other and how precious ,fragile days of our life are. Trying to express our feelings through this blog-we hope to help our readers to understand our feelings and thoughts bringing out questions that arise during this whole process.Getting though today -we celebrating life & Sammy-our Angel who keeps fighting!
Cheers!
XOXO Sammy and Family