Balance

Hi All,
Little by little we are finnaly bug free. Sammy is doing well almost done with his antibiotics.
His spirits are down now days.He has been very quite lately.Very little movement or sounds.
It looks like he is ,so tired of all of this . Bath make it worth a while ,water gets best reaction and happiness from Sammy. We try to bath his as much as we can ,mind you that he is just about 100 IB now,so I need major assistance with it.
Family is in OK shape -balance our lives around Sammy is our main concern. Every one has to help out ,only united we can give Sammy best care and support its obvious that hearing all family members voices make a difference for our boy.
We realize that lock of sleep and intense schedules throwing us of scale ,so we take turns to relax
giving each other break, few days a week we rotate it for each other.It can be night out with friend or movies ,the basic idea is snap out of depressing environment just for a moment.
It helps me ,gather my thoughts ,plan our week and get tremendous amount of medical papers ,requests assorted out . If I tell you that in 2 years we received 52 denial letters because Sammy's condition is ,so rare . We hope that new health care plan is in our favor ,but it sure does not look promising,who wants to pay bills for a child in vegetative state........
What ever happens ,happen ,but it must be in most humane acceptable way .
XOXO Sammy and Mom