Comming out of dark..

Hello fans,

Getting back to our daily lives, getting to know our schedule is our focus for know.

Now at home you have 'moments',some flash backs , some bits and pieces of the past few month.It feels that we where in the dark back then.I felt that there was a battle for Sammy's life and their was no way I was giving up on him!Coming back to light has been challenging ,but very exiting.Even if you snick-pick at the sunny bright future you think of a shadow -of this past experience that will always be in your memory and part of sunny day,you think how beautiful life is ,how much Sammy enjoys being home and warm days -but my friend dot to forget about sun-block! My mind is always occupied with many new questions.Have we reviewed all available studies on ALD?Is it time to re-visit? Is there anything else we can do to protect Sammy? Are we missing anything that needs to be done now?Does he have to be immunized again?Can any new immune shots hurt him?When is it safe to go back to alternative medicine?As soon as Sammy will get better,this and many other questions needs to be answered
We will be looking to get consultation in the clinic that is most familiar with ALD. It will be helpful to find out more about Sammy's particular case. We would like to know more about this rare devastating disorder ,to be able to fight it!
Sammy is not wasting any time.He is getting back to his old self. Yesterday on the bus to Rehab we picked up another gentlemen-our new friend Bob. Sammy handled him self nicely ,but going back home decided to get to know Bob little better. He kept pulling on Bob's lunch box and after he moved it out of Sammy's reach Sammy decided to pull on Bob's jacket. We appreciate all the patiens of this older gentlemen,because after jacket was out of Sammy's reach he started to play with Bob's wheelchair. Any way Sammy pretty much is only kid at Rehab and everyone babies him. During lunch break some one brought crispy-creams donuts ,as a' good buy' treat. Sammy had one and was looking for more. I moved few last donuts from top box to the box bellow it,so there will be 'no more left'. Sure enough ,Sammy reached out for more.I opened top box to show him ,'No more'. He try to move it out of his way pointing to the box underneath!Go figure! This was my son!My Sammy ! Keep going Sammy,we will be waiting.
Sincerely Sammy and Mom.