Fragile ...

Hello everyone .Happy Mother's Day.
This is very special Mother's Day for me.It turned out that we didn't forget how to celebrate happy occasions,we had many things to be thankful for this year.All of my children had called or give me a present.Sammy celebrated with us.He loved cookies and chocolate treats.
It was such a peaceful event having lunch with my Mother-in-law ,who has been a great supporter with grandfather.I hope you had a wonderful Mother's Day too.
Going back to adjusting with home life.I found to be very difficult to protect Sammy from unannounced visitors.People seems to be 'Blind' to Sammy's fragile state. Many have no idea what this child went though and continue fighting at present time.He can't be part of a larger crowd or public place or people that was exposed to any bacteria. I try to educate as many 'unannounced' visitors about difficulty to fight bacteria do to Sammy's suppressed immune system and how important it is to keep Sammy healthy. I'm placed in the position to turn people away from visiting Sammy even know that they might have the best possible intentions.After all if this is something that can prevent putting my child in jeopardy ,I will not be shy to follow necessary steps even if my actions can be interpreted as being rude.I really hope that people could be little more sensitive to our current situation ,that it might take many month of slow adjustments for Sammy to be able to resume his old activities in the future.We don't know how long ,but it might take up to 1 year after transplant or more.
On the other side Sammy has been adjusting much better than his mom .His has new floor place mat /just like gym-kind/ for playful-workout.Placed on his tummy Sammy has been trying to move little more.We are giving him much more freedom to move.The goal is to reduce wheelchair placement at home and promote more movement,fun activities with toys on the mat.Naturally we have seen some resent positive developments -reaching for the toys, pushing off his arms.Freedom of movement may be the key to successful recovery-certainly being constricted in the wheelchair is not natural and unnecessary to a child that is getting back to be active.
Thank you for your continues support ,Sincerely Sammy and Mom.