Life is Not ,so simple....

Hello Friends,
I was thinking what to wright about .What came to my mind is a story. When woman came to Almighty and ask him for help saying ' G-d ,-I did everything right in my life , why did you send me such a challenge,test ?'Why me,why my family?'
Almighty said: Life is not ,so simple.....' I will help you only on one condition,if you go visit 10 families of your choice just like yours and see what is going on there.' Woman did just what G-d told her . After a while woman realized that what she was upset about was 'Nothing!' compare to what others are going through.....
She never ask for help after ,instead she had to learned how to deal with her situation.
Sounds familiar? Is your challenges looking difficult lately or they just became 'a piece of cake?'

Sammy had some great days . We learned that while held he Loves getting back massages.
To help him with back we try to change his sides when he is sleeping,so Sammy is not always on his back,but this is the first time in many month when Sammy is looking weaker than before. He is not able to move ,but will cry if in pain.It is an adjustment . We feel that at this point all we can do is comfort and give him love and affection everyday. We are very lucky to have Sammy with us and thank G-d for this gift.
XOXO Sammy and Mom

December 21

Hello Friends ,
Today is 1 year since Sammy's initial diagnosis. It was bitter news,but we finally find out what was really wrong . We have searched to find an answer and there it was .
It's hard to describe that feeling when your blood freezes in your veins,when you can't hear your heart beat anymore,when you feel adrenalin rush to your temples-all in that moment -when you hear that your child has 'Life threatening condition'.
On the positive side with correct diagnosis -in the past year we could research,weigh our options and fight for Sammy's life ,something we could not do before. We are lucky in the way that ,we have had an opportunity ,options ,possibility's to help Sammy to survive. And now we give our trust and future to Almighty, creator of us all. Looking for a miracle and further instructions ,we praying for 'His' help to turn this illness around and help to balance and recover Sammy's body and sole.
Sammy have had an exceptional day today.Its first day of Hanukkah ! We had many visitors today and Sammy enjoyed all the attention.
Sammy's had attended local school for Kindergarten and 1st Grade. He has many friends that ask about him. Parents ,Teachers,Students all ask Eva how Sammy is doing. Few days ago we got a visitor with a Special 'Surprise' .About 2 weeks ago she visited us last time and could not stop thinking of us she shared her visit experience and send a letter with update on Sammys condition. When she came in this time she handed me envelope with many signatures - Get Well wishes and a gift . We could not believe how many people thinking of us. We are ,so fortunate to have such a special school staff and family's surrounding us!
Thank you! Happy ,Healthy Holiday's!!
Sincerely , Sammy and Mom

Salute,Grandparents!

Hello friends,
Can't believe it winter again. This whole year has been ,so long and ,so short in the same time.
We get regular visits from our hospice nurse . She is always ,so cool and knowledgeable ,but this visit was little different. Every declining step and realization of it has been like a snap shot. This moment when I heard her short report to Stem Cell Team on the phone while getting further instruction from them ,she said that Sammy has declined allot in his condition since 4 weeks ago.
There it was in my face 'reality check'-undeniable professional opinion about Sammys present health situation. Its is a fact ,but 'Miracles' usually happen in situation like this ! We are ready for one!
This whole year has been difficult not only for us as parents,but for grandparents even harder. I just wanted to Thank my Mother and Father-in-law ,who has been caretaker for Sammy everyday of the week when I work. This two people has dedicated their whole life and to help us caring for Sammy and other kids at home. I can say that without their tender love ,care and attention it would be impossible for us to survive. We wish them love,to be healthy and Celebrate their 50Th wedding anniversary in few years with all Children and Grandchildren present in good health!Salute !
XOXOSammy and Mom

Rock-A-My-Baby...

Hello fans,
Sammy had very busy week .Going to school getting A's is not easy you know. In any case he is pretty tired at the end of the week and enjoying just relaxing ,spending time with family .
Yesterday when I was driving from work ,I had a urge to pick him up . I though it would be very difficult ,because Sammy does not use his body ,hand or legs anymore like before.His body movements rare and more of reflex ,not directed. When I managed to pick him up and give him big hug ,we set down on the couch and Sammy was on my lap in the rocking baby position.
I felt that this was it! It was that one piece of puzzle that I was missing. We both enjoyed each other company up close and personal ,that evening I've decided to do this every evening.
Yesterday, Sammy got a care package with gifts , our friends from synagogue send beautiful Holiday items -Thank you friends!
I like to use this opportunity and Thank our countless friends from our Temple and personally
Rabbi Shmuel Notik ,Rabitsin Shternie Notik and whole Family for dedication , visits at home, hospital , attantion,help,prayers through out this long year -We could not do it without your help- during such difficult ,demanding time in our life's.Thank you.
Sincerely Sammy and Mom.

Helping hand

Hello fans,

Today my blog will be all about just few people that have been helping through this challenging times in our lives.

Organization 'Chai Lifeline' reaching out to family's in crisis with a mo do 'Fighting illness with love'.

Our caseworker Sylvia has been helping us from very beginning. From hospitals visits to providing meals ,from getting us out of the house for enjoyable game or dinner to arranging gifts for our kids on holidays. The list can go on and on .Dedicating her time ,piece of mind and knowledge she arranges many things to comfort family's in need. She had helped us arrange and connect to right people for our respite care aid and help to pay for it.

When I look back ,I think of her as a' Giant'. It would not be possible for us to reach this level of comfort and state of mind if she did not take weight off my shoulders by guiding us in the right direction .

We Thank you-'Chai Lifeline' and Rabbi Shlomo Crandall-Regional Director , and our special Sylvia Abramson our tired less Case Manager.

Sincerely Sammy and Family

Spark of hope

Hello friends,
Today Sammy had a very good day. He was in school and after took a long walk outside with grandfather.When he got back home he made many happy sounds and look like was trying to communicate . There it was a tiny spark of hope ,may be it will happen ,may be Sammy's illness finally will turn around and he will be OK? He is very strong and I hope that we are doing everything possible to help him fight this condition as long as he possibly can.
One day last week I found my self rundown . I realized that slowly over course of this long year I was falling in to deep depression . Its time to pay close attention to this condition -who needs unable mom? Today I was awakened by Sammy and new hope.
When Sammy was making sound again ,it brought back many memories .It was just like a movie clip from our life before Sammy's illness. He use to make funny faces and make comments that would amazed adults.This little boy understood math before he entered 1st grade.He started to read in 2 weeks before kindergarten. In school he would show amazing ability to study ,his very best teacher and aid Lori had helped him with more challenging advanced math and reading ,so Sammy would not be bored in school. We still have a chance and the only way Sammy will continue improving if we would continue our fight and blind believe in his miracle recovery -no matter what!
Are you with us?! We hope you still with us, everything else does not matter.
Sincerely Sammy and Mom.

Smell the roses.

Hello fans,
Today Sammy is going back to school-Finally! He is ,so very happy there around loud noises and other kids-that is were he belongs. Our school team is exited .Hope he can stay awake for those 3 hr to learn something.
Mom found a new 'Must' treat. I get dozen roses every 10 days to replace old ones. I found it very pleasant to see Flowers in our kitchen vase everyday. I chose them by color,size ,smell.
Our roses must have light pleasant smell,so every time I feel down I can come and smell them.

Sammy's recovery after surgery went very well,you can barely see small marks on his skin from it. Our surgeon Dr Chin is truly remarkable microsurgery doctor in Children's Memorial -Thank you.
We will not visit our Stem Cell Unit anymore ,unfortunately there is nothing else they can help us with at this point. Our pediatrician Dr Gerald Levin/I hope he is OK with me mentioning his name in my blog/ is very best doctor you ever want to care for your child. Our Family doctor is in the same office and we feel fortunate to have such an amazing reception and nursing team -and entire staff -in the same office. Thank you for your countless hours of hard work ,Thank you Jill -our best nurse for all those phone calls and arrangements you've made in the past long year.
We wish everybody Health and Happiness in upcoming Holidays,
P.S. Dec 2007 -Sammy was asked which Holiday he celebrates -he said 'Kwanzaa',so Happy upcoming Kwanzaa everyone.
Sincerely Sammy and Mom