house

Hi Friends,
It seems that we have been in this house for ever.Just moved 2 weeks ago,but the feeling of a 'Home' not leaving us. We can relax,sleep, do our chores in much better atmosphere than before.
You would think that its only place to live? Not really. Only now we can look back and see how much changed since we have been in our old house.The memories of the other place is not great.
Moving forward with old bills tagged alone to new ones we will be able to get through this too.
In the big picture well being of your loved ones is whats important .
Sammy have had rough week . He is very sad.
When our friends visit last weekend, I put Sammy in his wheelchair and whiled him out side .
He was ,so happy to be part of loud noises and some what familiar voices.
It became clear that he is in there and he needs as much interaction as we do.
His schedule remains the same. He have his walks outside every day and reading time with his best friend and teacher Laura ,who continues to read to him 5 days a week -no matter what.
Its just incredible how many wonderful people we have had pleasure to meet in the past 2 years.
If not for their support ,we would have allot harder time to go through our journey.
Sincerely Sammy and Mom

Hitting rock bottom...

Hi Friends,
Last week we hit rock bottom. Meaning , we need a plan. It happened that we give all the attention to our little Angel leaving everything else aside.It's clear that we have to figure out a way to get our life back on track . As far as I'm concern -its all will work out.
I guess I blind believe that we will prevail, that it takes time and ALL of our strength to get through every bump and moment of what ever it is we were destined to get through.
Main job we have now is to keep our family together from falling apart, sometimes realizing things that must change,pointing out things needed shifting and actually turning it around.
All this is important ,but not as important as Sammy's care. He will always be center of our concern,attention,affords -we can not have it any other way.Like my girls say 'Its family..' if anyone of us needs help ALL must rise and help with what ever it is possible.
Keep positive ,there is always a way or few out of difficult situation ,use your positive energy wisely.
Sammy and Mom

A Joke

Hi All,
Mom is finally speaking again. 'Too bad'-said my husband. He said you were a 'dream wife' during this few days. You cook,clean and never said a word.....
Our family always jokes.No matter what happens -humor is very important part of our life. You can make a point by joking without spelling it out. I just have to share this funny episode the other day:
At work ,this elderly women browse through our merchandise and finally said:
-There is NOTHING here that knocks my socks OFF!
-Well,/I said/ Ma'am, you don't have any socks ON?!.....

It made my day. It always makes it ease if you can switch your attention to something else -just try to make best out of it.
When people smile -there is a special energy around them-it opens peoples hearts .All of a sudden -you become friendly with person you just met 5 minutes ago...

Sammy . He is well. Sammy had few very good days! We needed that. He smiled,made more noise than usual. I have to give full credit to his nurse -that takes such a good care of Sammy while I work! She is really the best-we are lucky to have her .We also know this that he grew ,we were just trying to guess how much he weights?! This will be our task for this weekend.

I hope every one is well.
XOXO Sammy and Mom

Missing Sammy....

Hi Friends,
Today I was send home sick with laryngitis.I can't talk on the phone at all,so blog ,my e-mail
is only communication for now. I guess I can get a taste of Sammy's inability to speak anymore.Let me tell you-it is very difficult to hear everything and not being able to reply. G-d is working mysterious ways why laryngitis?
In the past few days I met another amazing women. We just talk.She had a very quite but sophisticated look,very intelligent and reserved. She was able to listen without interrupting ,something I never being able to do. I guess ,there is allot to learn .There is always room for learning,improving ,sharing.
Sammy . Sammy has been very tired lately. He is ,so beautiful. He lives for hugs and kisses,when I walk in he knows right away . What a special treasure Sammy is.
Small,beautiful ,crystal clear -this is the how many treasures come to our life.
I can't come close ,just afraid to pass this awful cold to him.
If any one only knew how much we missed our Sammy....His laugh,his smart jokes,voice,hugs...
Our new place is very peaceful. We feel great here. Very good energy,old oak trees in the back yard . I can relax here after every one is sleeping in the house.
Other wise ,no news is a good news .

something,somehow,someone......

Hi ALL,
SO glad last week is over. Its seems just we needed the most we were channelled to G-d 'path ' for help.Miracle did happen and Sammy will have home nurse to care for him while I'm working for 10 weeks for now. It was magical, something told me to call again,somehow I got to different extension ,someone call for us, the ball was rolling and the chain reaction put together right people to advocate for Sammy and Family. It was like my prayer was answered .
Sammy have had his share of though days .The vomiting is still a problem,seems that some function is not working as well as before.Is it fixable?
Sammy feels every emotion and understands what is going on .Last week was difficult for all of us .
Settling in our old-new place.Its is wheelchair accessible throughout. Sammy have used his new bathing chair and like his shower very much.The porch is on the same level,so when walk is a problem we can wheel him out for a fresh air. This home feels great ,our old house holds sad moments and bad vibes for some reason it's easy to breath here.
Our friends had visited all ready. Its is not what is home looks like or what size it is-its who you share it with. We love to cook and have people over and nothing can change that.
Sincerely Sammy and Mom