Salmonella

Hello friends,
That's right we are dealing with salmonella now. Sammy's sister came back from vacation and borough a 'present'. At first she was OK. Than after just few days ,she was in severe stomach pain. It took a week to get better. At the time we treated at as 'stomach flu'. When I got early morning 'wake up call' -I could not believe its -Salmonella.
I just had to laugh. It was probably a weird reaction,but how much one family can go through in such short time? Forget the rest of us- the scariest part it can effect Sammy. We are waiting for results.
Mom was on cleaning frenzy all day.Disinfecting all the corners ,specially Sammy's room .
Sammy end up in the long bath.He loves bath salts from dead sea,they are lightly fragrant and bubble. After socking ,massage,lotion and all 9 yards. He was tired,so is Mom.
Concentrating on constant hand wash, sterilizing for now. We will find out in few days if any other family member is effected.
Otherwise ,business as usual. How about you?
Sincerely Sammy and Mom

Soul

Hello everyone,
Ones again Sammy is better. He is able to respond and listen to many people visiting.
He enjoys a story teacher reading to him,some times making signals that he is following.
Now that is warmer outside ,Sammy can be outside even longer .
On the other hand Mom is distressed after awaken from a really vivid dream.
-One women had a difficult time in her life.She was fighting for a chance to save her child's life ,trying her hardest with her family by her side.
In one moment she hears a voice . It was her Soul talking to her saying -'Give your self a break,take it easy for a moment'. Familiar situation? I realize it was me looking at my self from different point of view. It is really a time to slow down?
Would it mean that I'm giving up on the fight for Sammy's life? Or it would just mean to give my self a break?Or it means that I had fulfill all possibilities and have to get use to that fact?
I was not able to find an answer, can you?
xoxo Sammy and Mom

Whats cooking,Good looking?

Hello everyone,
Finally Holiday week is over. Sammy was stable for weeks it was nice while it lasted.He has been running low grade fever for few days now.We never know what to expect .
Its like a gamble trying to figure out what is the cause of fever.It reminded me of an expression that Sammy use to love 'Whats cooking -Good looking?' It seems to me that Sammy is cooking something , hopefully its just a cold-nothing serious. G-d knows we want to have him with us as long as possible. Seeing him every day and being able to talk to him -brings us happiness.
Monitoring his vitals every hour helps keep truck . I try to think with my head ,not my heart .
Otherwise our daily routine stays the same with exception of outside walks. One one hand its good for Sammy ,on the other hand my instinct tels me - we should skip it until we can stabilize his temp.Tomorrow we will know more what is going on.
XOXO Sammy and Mom

Where are we?!....

Hi everyone.
This Holiday week is great and sad the same time. Before when preparing for Passover kids always made special trip to do Passover shopping. This year ,it was not the same.Last year ,I cant remember much of Passover,we where still in the hospital with Sammy.This year during Passover shopping we came across special items that Sammy use to love and waited whole year for . It makes Holiday full of memories back when Sammy use to run all over the store looking for chocolate covered Matzot packages.....
Something else surfaced in my mind ,this time last year ,I read an interesting book that I keep coming back to.
It comes to my mind one fragment of the book . There was a paragraph dedicated to stages of grief. In my mind ,I had check marked stage by stage that was described.
Anger-did that.Bargaining-possibly,Acceptance-that is the stage we have been stuck with for the past several month. It is against our nature to accept Sammy's decline without continues fighting,believe. It seems that after all this rules does not necessarily apply to every one at every time. So where are we in this stages? Its seems that we go back and forth up and down the stairs. Do we all made of the same material?How much fuel do we still have?
Stubborn believe in the bright future ,no matter what today bring us -is what we know best. There is always a sunny day after rain,there is always warm weather after cold winter.
Sammy on the other hand surrounded him self with many girls.He enjoys attention from every visitor . From reading , music therapy to regular nurse visits ,soon massage therapy and walks outside. As long as he is involve in activity and does anything but just laying in bed-Sammy is happy. That is our goal ,to keep Sammy's days happy. Give him as much attention ,love support we possibly can.
Do you know where you are in your life? Is there anything you wanted or regret not achieving?
Sincerely, Sammy and mom.

Tender Care

Hello Friend,
Sammy had a beauty appointment with Mom for bubble bath,manicure ,pedicure and massage .How many of us get pampered on everyday basic? Well ,Sammy does.
When he was done with all the trimmings,filling,cleaning,massage-he was exhausted . He looked like a million dollars and shined like a brand new coin.
Every one made a comment how good Sammy looks and smells. Occasionally we would see a smile on his face 'felling good'after those comments.
While Eva and grandparents was on vacation the house was so quite and clean.
There is something unnatural about quite house. We always had ,so much noise while our kinds was growing up. I never new that there is other sounds- other than kids laughter ,much noise from playing games,solving disputes between siblings.
There is a pattern of weird events that something is braking every days.
First there was a fridge ,than a pipe,today Sammy's feeding pump . I don't stress out about those small things anymore. I know that things will work its self out naturally. Of course its nice to have life running smoothly ,but there is no such luck-everyone has one of those days or weeks or years/in our case/
Have you ever been stranded in chain of unfortunate events? Were you able to deal with it without stressing out? Are you kind of person that thinks with its heart or head?
XOXO Sammy and Mom.