Flash back

Hi All.
Its 2:31 am.Why cant I sleep?
Few days ago we had a visitor.Some one who new Sammy for those 2 short years in kindergarten and 1st grade ,who saw us struggle trying to find answer to what is happening .It was a flash back and reminder that Sammy was walking and talking once before.She was puzzled about Sammy's condition too,trying to help alone with concern school staff.She brought a video,10 minute flash back from the past showing Sammy in the 1st grade interacting with school mates and his aid Laura. Watching this video for the first time left me and Alex devastated and ,so very sad.After I thought about it ,I realized how important it is to have this memory -this only video of our son.
Since than we keep watching it ,all of us .Sammy's nurse have been with us for 2years now . Knowing Sammy only ,so very sick all this time -she was ,so upset after viewing this tape it give her completely different angle of our life's than and now-She said she wished she didn't see it.
Who would of known that simple 10 minute clip can bring ,so many emotions?!
Yet ,this was another test and my conclusion is that we are so very Thankful for the opportunity to own this treasure .Thank you
Sammy and Mom

Close call

Hi Fans,
Last night was very scary.Late at night we lost power .It happened way too many times in the past month. We was very lucky that I was still awake and was able to act quickly.
Sammy's hospital bed has air mattress that is depends on electricity.
In a minute mattress was deflated like popped balloon.Sammy end up at the metal frame grasping for air folded up like a soft toy. I woke up Alex ,I was frighten to transfer Sammy on my own in the dark.Alex transfer Sammy in to our bed .I found my self covered in cold sweat.
It was close call,if I had fallen to sleep it would be tragic .All day today at work I could not shake it how could I pass beyond this kind of situation?! ,that on one hand is out of my reach on the other I would always blame my self that I should have been awake.
Its very hard to come up with better ideal than installing generator in our house.I know it is costly but I'm afraid that we have no other choice with family friends and G-d help.Sammy's bed,feeding pump,suction and many other life supporting equipment depends on electricity.
No we just have to figure out how to do it?!
This would be yet another challenge,but we will think of something it would not be first or last time to get creative.
Sammy and Mom