Spring swing....

Hello everyone,
Sammy got new hair cut.Buzzzzzz! The most interesting thing is that after transplant his hair got very dark almost black color.It turns out that under it his own lighter color coming through.
It seem that Sammy is getting back to his own more comfortable body ,even know allot of functions have been lost . His condition is much more stable ,when he does not have to fight any bacteria. We are careful with anyone who is visiting him in his room-hand wash is a must.
Just recently,I spoke to few people that indicated more cases of this horrific disorder in boys.
The age of boys are in much wider range than ever before. We have heard of effected boys as young as 2 years of age to nearly 14. Most cases believe to be from 6-12 years old before.
Parents of this kids will need a tremendous amount of support , that is why our web page is existing -please pass it on ! We are here to help other parents to support and help to deal with it.
Our house is full of friends again. We are back in to full swing this spring! Life goes on, we are living through our pains with friends and family.Just recently,I found my self thinking about 'things,some people that aggravate me'. Why waisting time on it? I guess our upbringing and constant reminder of to be 'kind to another person' prevented me to do 'Spring cleaning'. Not anymore. Get rid of negative in your life! What ever or who ever it might be!
Of course that's if you can recognize it first. Life is too short ,to waist it on unnecessary commotion.
Sincerely,Sammy and Mom

Play in my sandbox Mom....

Hello everyone,
Another party for Mom! This Saturday, my husband ,all kids and family was working very hard to cook ,clean ,serve! Saturday is Moms working day,so I entered in to 'Mom party heaven' that day. Everyone work ,so hard .Alek's cooking a storm!My older son Mike grilling,Eva setting up tables,Marina cleaning up .Wow! Thank you ,so much -what a treat!What about next year....?
Now ,back to our Sammy. His schedule have been pretty full .Every day we try to keep tight schedule on his meals ,play time,reading,walks outside,family time.
Mom finally found a great hand message unit-new gadget. It works great on Sammy's back and the rest of the body . His mostly laying positions has increased weakness of muscles and this is one way of increasing a blood flow and relieve ache .
Just today ,spending sometime with older daughter ,we remember how funny ,Sammy was before.We reminded each other of ones great times with now ,so weak Sammy.
I remembered taking a jacuzzi for the first time in the house,how my kids learned how to pick a lock on my bathroom door and enter .They end up in my jacuzzi in split seconds from entering not bothering to remove any of their clothing.
What a mass this was!Not only water overflowed on the floor , after we finally stop laughing hysterically and exit the bath-we discovered that there was very little water left since every other drop was spilled on the floor.
This are the precious memories ,that we will cherish for the rest of our lives.
Do you have many memories with 'parents turning to kids for a moment'?
When you fell like playing in your kids sandbox? Does it means as a child you have not played enough with your dolls? Do you ever wonder if your kids will remember their childhood as fun times?
XOXO Sammy and Mom

Follow your heart..

Hello Fans,
Its weekend again.
Sammy had pretty quite week.No surprises -Thanks G-d.
Mom has came back to work last week and had a 'warm' welcome back. It has been great change . I guess I was just too consumed with my own health concerns in the past few month,that I have forgotten how much I really missed selling and just meeting new people.
Retail had also changed in the past few month. Ones I get my perspective on different kind of stress between work and home- were my other hardest job in the world waiting for me -being a Mom. Every day I wake up with a new eye opening discoverys and thoughts.....
Sometimes it feels like you standing behind closed door and too afraid to open it-sensing that some one might be standing there...Which way is that door opens? Can you hurt someone if you open it too fast? Or to your surprise there would be no one?
Life is a constant guessing game ,do I figure out the right part of this path? or will get further away from the ultimate goal?
Its for G-d to know and for us to find out.....All we can do is follow your heart .
For now good night..
Sammy and Mom

Challanges

Hello fans,
Happy Mothers Day.
Naturally I had to work that day.
Our home is filled with flowers from my B-day.Mothers day and just flowers from friends.
Sammy is doing as well as his condition permits . Lately he got another increase in meds,to ease his pain.Relaxed he have been having allot better days . He is continue to takes walks everyday with Grandpa and Dad sometimes. Otherwise he is mostly in bed or on Moms lap .
I often think of people that surround us. Every one of you that had reached out or pray for Sammy has been in my prayers too. Tremendous support from all of you give us strength .
I specially pray for G-d give us power to understand and except things that we can't change in our life's. Sammy's current condition has been difficult to understand or except. I believe in chance of the miracle-it had happened before to other people and can happen again to Sammy.
Sammy is our Blessing and our whole family's life is build around his needs no matter what.
He is home and getting love and care he needs-we can't have it any other way.
Its is challenging to get back to work and still be a care taker 24/7,but life is full of challenges and we take them one at the time.
XOXO Sammy and Mom

Who is in my bed?

Hello friends,Thank you for million B-Day wishes!
Mom is officially 'big girl ' now. Never care about my age ,probably never will. I just see the importance of living productive life,hope that I can make positive difference ,no matter how long we have in this world.Big deal few wrinkles more .I think what matters is how much you had accomplished in your life not how old you are.
What a week! I went back to;' work today. It' was great to see many old friends and co-workers.
I'm sure it will take me sometime to get back in to routine,but my return fell very natural.
It was like fish getting back to the water,after all this is my 15Th year with this company,this is all I know and love doing-Selling gorgeous shoes! If I can't buy them all-at least I can see them every day and try it on..
Our Sammy was very confused today. At first he could not figure out who was in his bed. His older sister Marina is back from collage. Exhausted ,she completed her year with good grades.Go Marina-We are very proud of her.She exided our expectations so far!
She was ,so exited to see Sammy and family ,so she fell to sleep in Sammy's bed .I was just checking on him and could not keep my self from busting in to laugh. Sammy look exited,but confused.On one hand he got emotional and enjoyed cuddling with his older sister on the other hand he was trying to figure out who was in his bed?!.Ever since he started to talk instead of saying Marina -he shortened her name to Nina.That is what he always called her .
XOXO Sammy and Mom

Bend don't break...

Hello friends,
We have a good news,no one else has been effected by salmonella in our family.
Still working on promoting caution with in the household and school not to spread bacteria further ,awareness of importance of hand wash and not sharing any food with any one has been our focus.
Sammy is doing well this week. It's hard to believe we can catch a break for now.
In few days ,Mom's B-day . Its a 'BIG' one. Knowing that celebrations is impossible ,we are going away for 3 days this weekend . I never thought I can think of relaxing or catch some sleep....
Looking back on the past 3 month,the only thing I was preying for is for Sammy to be with us for much longer and strength to handle all of this.After going through some difficult time in the past 3 month,mom is coming back to work on Thursday of next week.
I keep thinking about how fragile we are,how easy is to break down. What comes to my mind is old saying 'Bend don't break' or 'Scare me G-d but don't punish me'....
Keeping strong is my goal,getting back to work and do my best that is what is on my agenda.
How about you? What is in you future? What is your plans?
XOXO Sammy and Mom.