Just Tuesday

Hi Friends,
Sammy had a visitor .Our Family's friend and Dentist Yulia came to visit.
We were concern about Sammy's teeth condition and as we expected he has few loose teeth.
It is something to be cautious about when we do his mouth care .Otherwise ,he is doing fairly well.
For few days now we have seen less activity and sadness.He still likes to listen to TV and Music.
Most enjoyable moments for Sammy is when we take him to our bedroom were the whole family ends up on our bed-watching TV.
He gets million kisses a day and many 'I love yous' from every one ,he is our angel our special boy.
Sammy and Mom

Hold me Mom

Hello Friends,
New Year started with a new Hope.
Sammy has been alert and more active than before.
Its nice to see the reaction to certain words or jokes.
Tonight, I had held Sammy just like I use to, when he was a baby and his tummy hurt. He smiled all day when Grandpa was talking .
We know that Sammy is definitely hears,reacts ,understand. I also realized today hat as long as he hears his Family voices -he is not scared.
His Bath time was pleasant as usual ,as soon as I said 'Who is going to take a shower?' Sammy made a loud sound responding to it.
Otherwise , we trying to survive without nursing help from hospice now.I would not apologize for Sammy surviving beyond prediction its kind of ridiculous to even have this conversation .

Good Night, Sammy and Mom

Happy ,Healthy-2010!

Hi Friends,
Wishing All of you Healthy.Happy New Year.
I was sitting and thinking what to wright positive?! On one hand things are getting more and more 'interesting' on the other ....Well, I just wanted to reiterate that its easy to wright negative its all around-you try to find good in darkness....
It's not important that we keep loosing home help ,for example last week we learned that now our hospice will only visit 1-2 times a week for short visit-why?! I guess we have been on the program for 1 year....The important in this picture is-that Sammy is fighting and biting ALL the odds ,so far.
Its mind blowing that according to his initial diagnosis 2 years ago he had only 6month!!!
Our champ is stable! We have to constantly think ways of making adjustments for a long term now. Few days ago I was asked how much is Sammy's weight? The truth is we can only guess.He gotten ,so heavy that I can't lift him alone. We hope that one day we will be able to visit Children's Memorial were we will be able to weight him for real.
Sammy is Ok. He will make sounds if he is alone.He knows when I'm home-always. How can he sense this? in the morning ,he will give me a smile and stretch and I will talk to him about everything. I would tell him what I have on my mind and he will listen .He waits for his kisses after morning wash routine and than he knows that its time for his meal and Moms coffee.
Its all good. Believe me we don't need allot -its the 'stuff' we want.....
Sincerely ,
Sammy and Mom