Holding his own.

Hello fans.
Sammy is finally back on track. I would say there has been some more minor changes ,but overall he looks good , well nourished and seems comfortable.
In his current condition things change fast. Even closest family can see less movement and less reaction to things. He is not reaching out with his hands like before and his other movements seems our of reflexes.
We have seen extra activity in the evenings. When he is put to bed. He moves his lips if he was talking to someone,he would have change of emotions and smiles. It like he is in different dimension sometimes and when spoken to he would zoom back in.
Sammy told me about 1 year ago ,that he can see G-d and talks to him,that he must follow G-d's instructions and he is doing just that.
I know many people ask me if I'm angry? I don't feel that anger will change anything . Instead I feel that this is time that we will trust G-d with his decision and let him do his job. There is a lesson to be learned ,there is a good reason behind this unfortunate circumstance.Every one of us has expiration date -I believe in it.
Holding his own ,he is bringing very special unity and much love among family and friends. People forget their own problems and stay united and strong with us. I said before that this child gives very special feeling when you meet him for the first time ,than you will never forget his face-what a special boy we have. We love doing special things with and for him -he is loved ,well cared for . Tuesday we might come back to school. That's right we are moving forward.
Sincerely Sammy and Family