Monday, February 8, 2010

2 years since Transplant

Hi Friends,
2 years ago ,we thought only miracle can get Sammy to this point.That is right, today Sammy's 2 years anniversary since bone marrow transplant.
It is a miracle. Even know ,that Sammy lost all cognitive functions ,but hearing -he has fairly stable life and with us at home.
We are ,so very proud that,today makes him one of few survivors after complicated and destroying transplant with ALD.Keeping us on our toes,like old times we have to keep up with his needs and enjoy his company at home.
Thanks to Rogena our dedicated nurse that is still help us with Sammy ,just 2 days a week-Sammy became a fan and has been following football whole season,listening to every game and comments. Also ,few days a week just for half hour Joanna /Sammy's aid/has been visiting .She has a son exact same age and got attached to our Sammy from the first visit.
Sammy ,knows Joanna's voice and responds a little if she ask for his help changing .Wow .
Stimulating him is our focus,as long as we challenge him with TV,Books,Music he is forced to process this information ,as long as he is able to do it -we are ahead of this ugly disorder.
With our prayers and only positive thinking in mind ,G-d will help us keep Sammy safe and comfortable.Day at the time ,we can prolong Sammy's joy here ,not suffering.
XOXO Sammy and Mom

1 comment:

Anonymous said...

it is amazing and inspiring that you can see the miracle hidden within such difficulties. May you be granted only revealed goodness in the days ahead.