No pain -no game...

Hello fans,
We decided to take a whole different approach to our daytime regiment. Instead of laying around and feeling bad for him self Sammy is in a 'Boot camp" awakening.No more P J's late in the day ,no more 2-3 naps during the day. We are taking back control of Sammy's schedule.
In the morning we are getting familiar with toothbrush again,even know Sammy doesn't brush it by him self yet ,but he knows how to hold it .He gets dressed in regular clothing now and sits in the wheelchair to eat his breakfast. After 3hours on and off therapy and lunch in between Sammy can take a nap. Than snack and play-book time. If our day is productive and Sammy worked very hard he gets rewarded with dinner in 'Big Red Dinning room' where some other kids and family's are gathered. If it's not too many people in the room and they are located at the far corner I will let him take off his mask.He is considered immune compromised kid and I have to take certain precautions with germs and other people around him that may be sick of carry some bacteria.Many other things are a concern and must be watched closely like food .No fast food, must be from allowed ingredients, must be on disposable plates with lids,freshly made and can't be sitting around open for a long time. If those things are not followed there is a higher risk of getting sick.Similar story with Sammy's room , everyone walking in must wash their hands ,put a mask on and have a very good reason for walking in...We have to keep protecting Sammy for many more month too come even after we get home . I have been a nervous wreck for the past 10 days to adapt ,as well as we can ,to a new environment.Otherwise we are trying to work hard and have fun too.How about you?? XOXO Sammy and still insane mother.