Monday, March 17, 2008

What's ahead?

Good evening everybody,
Ever since we started rehabilitation, everyone who seen Sammy after treatment and immediate family has this silent question in their eyes: How much he remembers from his life before transplant ? I have been trying to find the answer to this question my self .Today I learned that Sammy not only understands me like before in both languages/Russian and English/ he also being little lazy to talk. I think we have to experiment more to get him talk again.When someone does everything for you there is no need to push your self to say anything. He remember more and more things.I feel that he has majority of his memory.He recognizes more people and things he use to do before.
It looks like we will be in rehab sometime until the end of April. At that point it will be exactly 3 month spend in the hospitals. We are looking forward to go home.It's exiting and scary in the same time. I missed my work and would like to go back ,but before that I have to make sure Sammy is safe ,that proper adjustments are made, wheelchair access and adequate transportation are in place, medical equipment ,part time help while I'm at work. We are looking forward 100 day mark on May 18Th.This is time for his first after transplant MRI that will determine how successful transplant went.At that point we will have about 65% of after transplant survival.
It's truly amazing when I open my eyes in the morning and I have Sammy by my side! I can make him laugh and touch his skin that still smells like milk -even after chemotherapy. Sincerely Sammy and mom.

6 comments:

Anonymous said...

we eagerly await each new post with news of sammy and mom. thanks for writing and keeping us in the loop. we cant wait to see you and sammy in person. may it be very soon, wishing you continued optimism, strength and courage. You are a shining light onto all who know you.

Anonymous said...

Leshka,

Just keep moving, keep your chin up and look forward to 100th day and beyond.

Encourage Samik to push himself just a little more each day, tell him we are all counting on him and want to see him back at home soon.

Chaim Shmuel, Davai, You CAN Do it!!!!

Hugs,

The Muchniks

Anonymous said...

Alenka ! Derjis' , ti sil'naia devochka , vse viderjish ...
Celyiy tebia i Semky ...Vsegda s vami .Marina Ofer

Anonymous said...

Lenochka!
You are an amazing MOM! You’ll never give up – we know that!
Continue to fight and you’ll win. Sammy again will be healthy and strong boy.
Continue to pass your strength and optimism to your SON!
Be patient and smart. Stay strong and cool!
God bless you, Sammy and your family.
Irene

Anonymous said...

i am happy about the progress. thank you for keeping us updated. i am looking forward to the 100 day mark. hashem is surely by your side and hashem has no limitations. therefore sammy's recovery should be complete without any limitations. may hashem grant chaim shmuel complete and speedy recovery.
may be pretending not to fully understand sammy will encourage him to talk and communicate his idea. just a thought?!

tess said...

gelena sammy and your family are in my prayers daily.your a great mom i know you will do everything in your power .im thinking of you and want you to know your truly an inspiration to all of us. love your friend tess