Hello friends, I have been recuperating from a reality check from our resent meeting with doctors. I was told to look in to another way of communicating with Sammy in the future do to his disorder progress and high chance of not being able to talk or walk ever again. From very beginning when we decided to subject Sammy to bone marrow transplant we knew that doctors promised no guaranties,but this was the only known chance to safe his life in the event that disorder is not progressing. We are faced with countless 'What if" and 'May be'. Only G-d knows what is going to happen in the future.In the mean while we are leaving our lives like on volcano that can irrupted at any minute. Not only illness challenges is a concern,the emotional state of adults involved in this situation is a roller coaster.It comforting to know that Sammy not in pain now.He is taking day at the time .If he has a bad day he is sad ,if a good day he smiles.It is very different with us adults.That baggage that we carry in the back of us-knowledge and experience is not getting any smaller in fact its dragging us down. Like our real life experience raising our older kids ,seeing them grow up to be beautiful young people.High school graduation,collage, is just a feeling of completing some goals you set for your self as parent when baby is born .You see them taking their adult steps -that is just an extraordinary experience that we live for.
My biggest wish to see Sammy do those thing is very real. But life train is going forward without any consent or let you be in control or even use brakes when necessary.It stops at random stops and speed limit is unknown .Unfortunately it feels that you are just a piece of a puzzle and it will be put together whether you are ready or not.As my emotions taking the best of me ,Sammy is still making some progress.Yesterday he reached out an took his hat off.Today he tap my back for attention and even said something what appears to be 'Hi'.
So let's pray ,hope that this train is going in direction that We got our tickets for!
Sincerely Sammy and Mom.
Tuesday, April 1, 2008
Our trane is going....
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4 comments:
Stay strong chana! lets remember that this is a piece in the big masterpiece of g-d, if we would see the full picture we would thank g-d for this. but g-d decided that we should not be able to see the whole picture. Our job is to add light to this dark night,we can do this by continuing to pray for chaim shmuel and continuing to add in goodness and kindness. May moshiach come speedily now and there will be no more pain and g-d will wipe away our tears of sadness, forever!
amen! may we see complete recovery soon and may G-D will be revealed to us.
another boy had a transplant of bone marrow today. please ddaven on his behalf
Tuvia Chaim ben Yocheved, (Marc Weinstein): Here is the latest from the Caringbridge web site (http://www.caringbridge.org/visit/marcweinstein) regarding today's transplant. Please daven and say Tehillim,
may we hear only good news
stay strong! its a month of happiness and next month is a month of miracles and being free of our problems. may we see good news soon in a revealed way!
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